Health issues
Defunctioning stoma
What is a defunctioning stoma? A stoma is the connection of an internal organ to the skin.Sometimes, when the digestive or urinary system is damaged, blocked, or diseased, it may need to be diverted. The surgeon will divert the digestive or urinary system using a portion of intestine brought out onto the abdomen. A pouch (a bag) that will collect stool or urine is placed over the stoma.The stoma is created by a surgeon and can be:Temporary: it is put in place to allow an organ to heal, and is later closed.Permanent: it is permanent when natural continuity cannot be restored.The main types are:Colostomy (colon)Ileostomy (small intestine)Urostomy (urinary tract)A stoma is not a disease: it is a medical solution that helps preserve health, life and/or improve the patient’s quality of life.  What are the indications for a stoma? A stoma may be indicated in several medical situations.Digestive indicationsCancer of the colon, rectum or anusCrohn’s disease or ulcerative colitisIntestinal obstructionPerforation or severe intestinal complicationUrinary indicationsBladder cancerSevere urinary function disordersCongenital malformationsNeurological conditions affecting the bladderThe decision to create a stoma is made on a case-by-case basis, after medical discussion and patient information. How to care for a patient with a stoma at home? Returning home is an important step. With proper support, care becomes part of daily routine.Stoma careClean the skin around the stoma with waterDry thoroughly before applying a new deviceChange the pouch according to recommendations (generally every 1 to 3 days)Check that the appliance adheres properly to prevent leaksMonitoring the skin and the stomaThe skin around the stoma must remain healthyAny redness, pain or oozing must be reportedObserve the size and height of the stomaDiet and hydrationAdapted diet and hydration (depending on the type of stoma you have)In the case of a digestive stoma, certain foods may alter bowel movements: for example increase gas or odors (cabbage, onions, carbonated drinks)Remember to follow the advice given by the dietitian and your stoma care nurse during your surgeryPsychological supportLiving with a stoma can be emotionally difficult. Support from relatives and healthcare professionals is essential, and sometimes that of a psychologist. What to do in case of complications? Certain situations require special attention:Contact your stoma care nurse if:Itching under the pouchRepeated leaksPersistent skin irritation or wound around the stomaIf you have any doubt or question: one phone call is better than isolating yourself out of fear or concern.Seek medical attention quickly if:The stoma becomes black, purple or very painfulSignificant bleeding appearsAbdominal pain, fever, nauseaIf in doubt, do not stay alone: contact your home care team, the stoma care nurse or, if necessary, go to the emergency department. Your contact persons at H.U.B? At the Brussels University Hospital (H.U.B), several professionals support patients with a stoma:Stoma care nurse: main contact for care, education and adaptation of equipmentFollow-up at Erasmus Hospital: 02 555 56 30Follow-up at Jules Bordet Institute: 02 541 03 02Specialist doctor (surgeon, gastroenterologist, urologist)Medical secretariatAt night or on weekends, if possible wait until the next day or Monday, contact your home nurse or your general practitioner, or go to the emergency department if needed. Resources and useful links about stomas FAQ – The 10 most frequently asked questions about stomas 1. Can you live normally with a stoma? Yes. After an adaptation period, most patients resume an active, social and professional life. 2. Is the stoma painful? The stoma itself is not painful. Pain may occur in case of irritation or complications. 3. Can you shower with a stoma? Yes, with the pouch. 4. Can you do sports with a stoma? Yes, most sports are possible, with certain precautions (support belt, avoid contact sports, no abdominal pressure). 5. Are there odors? Modern pouches are designed to be airtight and absorb odors. 6. How long does a stoma last? It depends on the condition: some are temporary, others permanent. 7. Can you travel with a stoma? Yes. It is recommended to bring sufficient supplies; contact your stoma care nurse to help you prepare and anticipate. 8. What to do in case of pouch leakage? Change the appliance, check the fit of the equipment and contact the stoma care nurse if the problem persists. 9. Should the diet be modified when you have a stoma? Sometimes. Certain foods may influence urine, bowel movements, gas or odors. A dietitian will inform you about specific recommendations. 10. Who to talk to in case of psychological difficulties? Your stoma care nurse, healthcare professionals, hospital psychologists.
Defunctioning stoma
Health issues
In vitro fertilization (IVF)
IVF: Why? What? How? For whom? Why consider IVF?In vitro fertilization (IVF) is a medically assisted reproduction (MAR) technique that helps couples or single women conceive a child when natural conception is difficult or impossible. It is recommended in several situations, including:Blocked or absent Fallopian tubesMale infertility (insufficient sperm motility and/or quality)Repeated failure of other fertility treatmentsInfertility lasting more than 3 yearsAge over 40IVF is also necessary when embryos need to be tested in the laboratory before implantation to prevent having a child with a genetic disease (PGD - Pre-implantation Genetic Diagnosis).What does IVF involve?IVF consists of:Stimulating the ovaries to produce multiple eggs.Retrieving the eggs under medical supervision through a minimally invasive procedure performed in a day hospital.Fertilizing them with sperm in the laboratory (in vitro).Transferring one of the embryos into the uterus a few days later.Supporting the implantation phase with hormonal and medical follow-up.How does it work?The process involves several stages:Initial consultation: hormonal, genetic, and serological screening, ultrasound, semen analysis (spermogram).Treatment plan consultation: review of screening results, therapeutic proposal, informed consent, administrative procedures.Cycle start consultation: explanation and prescription of the different treatment phases.Ovarian stimulation: medication to produce multiple eggs.Egg retrieval (oocyte puncture): harvesting the eggs under light anesthesia.Laboratory fertilization: eggs and sperm are brought into contact.Embryo culture: monitoring development for 2 to 6 days.Embryo transfer: an embryo is placed into the uterus.Post-transfer follow-up: blood test followed by an ultrasound to confirm pregnancy.For whom?Heterosexual couples or single women experiencing infertility.Women up to 45 years old in Belgium (depending on hospital regulations).Patients with a reasonable chance of achieving the birth of a child. Practical Information on Coverage and Reimbursement Social Security and Mutual Insurance (Mutuelle)In Belgium, IVF treatments are partially reimbursed by the INAMI (National Institute for Health and Disability Insurance), depending on medical conditions and the patient's age (6 cycles up to and including 42 years of age).Basic reimbursement includes: consultations, lab tests, hormonal treatments, egg retrieval, fertilization, and the freezing of surplus embryos.Supplementary mutual insurance funds may cover the remaining costs (co-payments/out-of-pocket fees and sperm or egg donation).Individuals wishing to undergo IVF should check their personal situation with their insurance provider to find out the exact amount reimbursed.Private InsuranceFew private health insurance companies offer supplementary coverage to cover the portion of MAR treatments not reimbursed by the INAMI. Introducing the IVF Teams at H.U.B The Fertility and MAR Clinic has a multidisciplinary team specializing in IVF, supporting patients at every stage:MAR specialist physicians carry out evaluations, prescribe treatments, manage medical follow-up, and perform technical IVF procedures.Laboratory biologists carry out the fertilization of the eggs, as well as the culture and monitoring of the embryos.Coordinating nurses support patients, explaining protocols and practical care arrangements.Anesthesiologists ensure patient safety and comfort during egg retrieval.Every member of the team is available to answer questions and reassure the patient at all stages of the treatment. Discover our Fertility clinic Useful resources and links on IVF in Belgium [SITE WEB] Société Belge de Fertilité (SBF) : informations fiables sur les tech… [SITE WEB] Présentation de la Clinique de Fertilité et de PMA de l'Hôpital Univ… FAQ on IVF 1. How do the hormone injections work? Injections are administered subcutaneously (into the belly or thigh). Our nurses will train you during a dedicated appointment, providing a demonstration and written guide. Most patients quickly become independent in doing this. 2. IVF: What should I do if I miss an injection? In case of a missed or delayed injection, contact our team immediately. In most cases, a simple solution can be found to adjust the protocol without putting the cycle at risk. 3. Are hormone injections for IVF painful? They are generally well tolerated. Some patients experience mild discomfort or bloating related to ovarian stimulation, but these effects are temporary. 4. How long does an IVF cycle last? A full cycle lasts an average of 4 to 6 weeks, from the start of stimulation to the pregnancy test 5. How many appointments are required for an IVF cycle? A cycle includes several blood tests and monitoring ultrasounds to precisely adjust hormone dosages. The exact number varies depending on how your body responds to the treatment 6. Can I continue to work during IVF treatment? Yes, the majority of patients continue their professional activities. Appointments are scheduled to best fit your personal and work organization 7. What happens during the egg retrieval process? Egg retrieval (oocyte puncture) is performed under anesthesia (local or general, depending on the case) and takes about 15 to 20 minutes. You can return home on the same day. 8. IVF: Do I need to change my diet or lifestyle? A balanced lifestyle is highly recommended: a varied diet, moderate physical activity, and smoking cessation. The experts at the Brussels University Hospital will provide you with personalized advice. 9. What happens after the embryo transfer? A blood test is performed about 10 to 12 days after the transfer to confirm pregnancy. 10. What happens if the IVF attempt does not work? A follow-up review appointment is systematically arranged to analyze the cycle and adapt the strategy if necessary.
In vitro fertilization (IVF)
Health issues
Rare genetic and immune-mediated glomerular diseases
Qu'est-ce qu'une maladie glomérulaire rare ? Les maladies glomérulaires sont des affections qui touchent les glomérules, les filtres microscopiques du rein chargés d'éliminer les déchets et l'excès d'eau de l'organisme. Lorsqu'ils sont endommagés, ils peuvent entraîner une perte de protéines dans les urines, la présence de sang dans les urines et une diminution progressive de la fonction rénale.Certaines de ces maladies sont rares et résultent d'anomalies génétiques, tandis que d'autres sont liées à un dérèglement du système immunitaire (maladies immunomédiées). Ces affections nécessitent une expertise spécialisée afin d'établir un diagnostic précis et de proposer un traitement adapté. Quels sont les symptômes ? Les manifestations varient selon la maladie et son stade d'évolution.Les signes les plus fréquents sont :Une protéinurie (présence excessive de protéines dans les urines) ;Une hématurie (présence de sang dans les urines) ;Des œdèmes, notamment au niveau des jambes ou du visage ;Une hypertension artérielle ;Une altération de la fonction rénale ;Une fatigue importante ;Dans certaines formes génétiques, des atteintes d'autres organes peuvent être associées.Certaines maladies peuvent évoluer silencieusement pendant plusieurs années avant d'être diagnostiquées. Comment établit-on le diagnostic ? Le diagnostic repose sur une évaluation approfondie réalisée par une équipe spécialisée.Les examens peuvent comprendre :Des analyses sanguines et urinaires ;Une évaluation complète de la fonction rénale ;Une biopsie rénale lorsque celle-ci est indiquée ;Des analyses immunologiques spécialisées ;Des examens génétiques visant à identifier une cause héréditaire ;Une évaluation des autres organes potentiellement concernés.L'identification précise de la maladie est essentielle pour adapter le traitement et déterminer le pronostic. Notre prise en charge au HUB Le HUB dispose d'une expertise reconnue dans le diagnostic et le suivi des maladies glomérulaires rares, qu'elles soient génétiques ou immunomédiées.Les patients bénéficient d'une prise en charge personnalisée intégrant les avancées diagnostiques et thérapeutiques les plus récentes.Expertise en maladies glomérulaires raresL'équipe de Néphrologie prend en charge l'ensemble des maladies glomérulaires rares, notamment :Les syndromes d'Alport et autres néphropathies héréditaires ;Les podocytopathies génétiques ;Les glomérulopathies liées aux anomalies du complément ;Les glomérulonéphrites à dépôts d'IgA ;Les glomérulonéphrites membranaires ;Les vascularites associées aux ANCA ;Le lupus érythémateux systémique avec atteinte rénale ;Les maladies glomérulaires associées à des maladies systémiques rares.Chaque dossier est discuté au sein d'une équipe spécialisée afin de définir la stratégie diagnostique et thérapeutique la plus appropriée. Une prise en charge multidisciplinaire La prise en charge des maladies glomérulaires rares nécessite souvent l'intervention de plusieurs spécialistes.Selon les besoins du patient, les équipes suivantes peuvent être impliquées :Néphrologie ;Génétique médicale ;Immunologie clinique ;Rhumatologie ;Médecine interne ;Anatomopathologie ;Ophtalmologie ;ORL ;Cardiologie ;Pédiatrie spécialisée.Cette collaboration permet une prise en charge globale tenant compte de toutes les dimensions de la maladie. Collaboration avec l'HUDERF De nombreuses maladies glomérulaires rares d'origine génétique se manifestent dès l'enfance ou l'adolescence. Le HUB collabore étroitement avec l'Hôpital Universitaire des Enfants Reine Fabiola (HUDERF) afin d'assurer un parcours de soins coordonné pour les jeunes patients atteints de maladies rénales rares.Un programme de transition pédiatrique-adulte est organisé afin d'accompagner progressivement les adolescents vers les soins adultes. Cette transition structurée permet d'assurer la continuité du suivi médical, le transfert des données cliniques et génétiques ainsi que l'acquisition de l'autonomie nécessaire à la gestion de leur maladie.Les équipes pédiatriques et adultes travaillent conjointement afin d'offrir une prise en charge cohérente et sécurisée tout au long de la vie du patient. Quels traitements sont disponibles ? Les traitements dépendent du type de maladie identifié.Ils peuvent comprendre :Des traitements visant à protéger la fonction rénale ;Des médicaments réduisant la protéinurie ;Des traitements immunosuppresseurs ;Des biothérapies ciblées ;Des traitements spécifiques de certaines maladies génétiques ;Une prise en charge des complications cardiovasculaires et métaboliques ;Une préparation à la transplantation rénale lorsque celle-ci devient nécessaire.L'objectif est de ralentir l'évolution de la maladie, préserver la fonction rénale et améliorer la qualité de vie. Recherche et innovation Le HUB participe activement à la recherche dans le domaine des maladies glomérulaires rares.Les équipes sont impliquées dans :Des registres nationaux et internationaux ;Des programmes de recherche translationnelle ;Le développement de nouveaux biomarqueurs diagnostiques ;Des études génétiques ;Des essais cliniques évaluant de nouveaux traitements ciblés.Cette activité permet aux patients d'accéder à une expertise de pointe et aux innovations thérapeutiques les plus récentes. Notre expertise Le HUB est un centre de référence pour les maladies rénales complexes et rares.Nos points forts :Expertise reconnue dans les maladies glomérulaires rares ;Accès à des analyses génétiques spécialisées ;Réunions multidisciplinaires dédiées ;Collaboration étroite avec les spécialistes des maladies systémiques et génétiques ;Parcours structuré de transition pédiatrique-adulte ;Participation active à la recherche clinique et translationnelle ;Approche personnalisée centrée sur le patient. Nos spécialistes Service associé
Rare genetic and immune-mediated glomerular diseases
Health issues
Oesophageal cancer
What is oesophageal cancer? The oesophagus is the digestive tract that carries food from the mouth to the stomach. Oesophageal cancer is a malignant tumour that develops in the oesophageal mucosa (the innermost layer of the wall) and then progressively invades the different layers of the oesophageal wall. Cancer cells can also detach from the primary tumour and migrate to the lymph nodes or other organs (liver, lungs, bones), where they form new tumours called metastases. The main risk factors for oesophageal cancer are smoking, alcohol consumption and their combination, as well as gastro-oesophageal reflux (Barrett’s oesophagus). In Belgium, 1,400 new cases are recorded each year. It is four times more common in men than in women. Surgical treatment for oesophageal cancer is offered depending on the stage of the tumour.To determine this stage, a series of diagnostic examinations will be performed:An endoscopy of the oesophagus and stomach, during which biopsies of the tumour will be taken and sent for analysisA cervicothoracoabdominal CT scan to assess the extent of the diseaseA PET scan to assess the extent of the diseaseEndoscopic ultrasound to assess the depth of the tumour and the presence of lymph nodes (with a biopsy needle aspiration if necessary)A nutritional assessmentA cardiorespiratory assessmentA geriatric oncology assessment if you are over 70 years oldDepending on your needs, other examinations may be performed (MRI, bronchoscopy, ENT consultation, etc.). The diagnosis of cancer is confirmed by the histopathological analysis of the biopsies taken. There are two types of cancer originating in the mucosal layer of the oesophagus: squamous cell carcinoma and adenocarcinoma. Care management Which surgery? These various examinations make it possible to offer treatment tailored to your situation, depending on the type of cancer, the extent of the disease and your general condition. The choice of treatment is made after analysing the various results, which will be discussed at a multidisciplinary meeting attended by surgeons, oncologists, radiologists, gastroenterologists, radiotherapists, pathologists and other relevant specialists. Surgery is the treatment offered for localised cancers. It involves removing all or part of the oesophagus. Reconstructive surgery using the stomach or intestine (small intestine or colon) is performed at the same time to restore continuity of the digestive tract. The lymph nodes near the tumour, oesophagus and stomach will also be removed and sent for histopathological analysis. Surgery may be preceded by chemotherapy, combined in some cases with radiotherapy, depending on the extent of the disease.If the tumour cannot be operated on, chemotherapy may be offered, with or without radiotherapy. This treatment aims to slow the progression of the disease, relieve symptoms and improve quality of life. Depending on the location and type of tumour, the surgeon will use two or three surgical approaches:Abdominal and right thoracic approach (subtotal oesophagectomy)Abdominal, right thoracic and left cervical approach (total oesophagectomy)Before your surgery Good preparation for surgery is essential. You will therefore be asked to follow a series of recommendations:Stop smoking: this will reduce the risk of pulmonary complications after your surgery.You are advised to stop smoking 4 to 6 weeks before your procedure. A tobacco specialist at our hospital can help you do so.Avoid alcohol: alcohol can interact with the medicines we will need to give you. You are advised to stop drinking alcohol at least 4 weeks before your procedure. Psychological support may be offered to help you do so.Walking: exercising daily (brisk walking for up to 30 minutes twice a day) will prepare you to be in better condition for your procedure.Breathing exercises: you will be given a small spirometer to carry out your exercises at home and prepare your lungs as well as possible for the procedure.Low-fibre diet: to be started 5 days before your procedure (you will be given a list of permitted foods during your appointment with the surgical coordinator).Our surgical coordinator will also arrange appointments for you with an anaesthetist, a dietitian and a physiotherapist to prepare you as well as possible for your procedure. If you have lost a lot of weight, a dietitian will prescribe nutritional supplements. Before your procedure, maintaining your healthy weight and muscle mass is a priority in order to prevent malnutrition. Malnutrition is a condition resulting from an insufficient nutritional intake compared with your energy and protein requirements. You must eat enough healthy, varied and balanced food to maintain your strength, immunity and resistance to infections, and thus avoid certain complications during your surgery. We therefore recommend a nutritional supplement that supports immunity and wound healing through arginine, omega-3 fatty acids and nucleotides. You may also consume the same supplement in the event of malnutrition after your surgery. Sometimes, it will be necessary to place a nasogastric feeding tube, a gastrostomy or a jejunostomy endoscopically or surgically to provide nutrition.You will be admitted to hospital 24 to 48 hours before your surgery. On the day before your procedure, you will be asked to drink apple juice (approximately four 20 cl cartons) or non-carbonated iced tea (approximately three 33 cl cans). From midnight onwards, you must no longer eat solid food; you may continue to drink clear liquids (liquids containing no pulp or milk) until 4 hours before your anaesthetic. The anaesthetist or your surgeon will prescribe the medicines you may take on the morning of the procedure with a sip of water.After your surgery After the procedure, you will remain under observation overnight in a post-anaesthesia care unit before returning to your room the following morning. In some situations, monitoring in the intensive care unit will be necessary. To reduce postoperative pain, the anaesthetist will have placed an epidural before the procedure, which will continuously deliver painkillers. You will keep it for 5 days. You will also receive intravenous painkillers. You will be asked to assess your pain daily on a scale from 0 to 10: a score below 4 out of 10 indicates that your pain is well controlled.Drains are also placed during the procedure (in the thoracic and abdominal and/or cervical areas) to remove accumulated fluid. They will be removed progressively during your hospital stay. A urinary catheter, a small tube inserted through your urinary canal into your bladder to allow urine to drain, is placed during the procedure and will be removed within 48 hours after the operation unless contraindicated. A nasogastric tube, placed during the procedure through the nose and down the throat into the stomach, is left in place to empty the contents of your stomach during the first few postoperative days. It will be removed after the follow-up radiographic examination (OED).After your procedure, you will remain strictly nil by mouth until the OED has been performed. You will then receive nutrition either parenterally (through a venous system), through a jejunostomy tube (a small tube placed in the small intestine during the procedure), or through the nasogastric tube. Intensive respiratory physiotherapy and mobilisation sessions will be prescribed daily and started the day after the procedure. The follow-up radiological examination will be performed between the 6th and 7th postoperative days. If the examination shows no leak at the anastomosis (the suture between the oesophagus and stomach), the nasogastric tube will be removed and you will be allowed to drink, but only a few sips of water. Oral feeding will then be resumed. You will be given instructions for a soft, puréed and small, frequent-meal diet for 6 to 8 weeks.Your eating habits will also need to be adapted after surgery Initially, the texture of your food will be modified. It should be puréed or soft, that is, easy to eat, for example: bread without crusts, soaked rusks, dairy products, minced meat (e.g. minced steak, prepared steak tartare, meatloaf, etc.), tender poultry (e.g. chicken thigh, etc.), boneless fish, eggs, mashed potatoes, cooked, tender and low-fibre vegetables (e.g. cooked carrots, courgettes, etc.), stewed fruit or very ripe fruit without the skin (e.g. kiwi, pear, etc.), and so on.Later, the diet can be broadened, but thorough chewing will be important because your jaw will act as a blender. You should eat in a calm, stress-free environment, dividing your food intake into smaller meals (6 small meals spread throughout the day), because the procedure reduces the portion sizes you can eat. You should also drink between meals in small sips (1 to 1.5 litres per day), avoiding carbonated drinks, especially during the first month. Do not hesitate to enrich your diet, as your food portions will be smaller. For example, add an egg yolk to mashed potatoes, meatballs or melted cheese to soup, or crème fraîche to vegetables.Risks and complications associated with the procedure 1. During the procedure:Bleeding that may require a blood transfusionRib fracture related to the right thoracotomy, which will be treated with painkillers.2. After the procedure:Pulmonary and infectious complications.Anastomotic fistula: this is a leak at the suture site between the oesophagus and stomach. Initially, it will be treated medically, with possible drainage or placement of a prosthesis endoscopically. Very rarely, repeat surgery is indicated.Delayed gastric emptying, with or without pyloric spasm. This will be treated medically (with medication to stimulate gastric emptying), possibly combined with an endoscopic procedure on the pylorus.Wound infection treated with local care, possibly combined with antibiotics.Long-term stenosis of the oesophagogastric anastomosis: this is a narrowing at the suture site between the oesophagus and stomach, revealed by difficulty passing food. Treatment is endoscopic dilatation or placement of a prosthesis.Long-term gastro-oesophageal reflux, treated with postural measures and medication.Returning home You may return home after 9 to 12 days in hospital. You will be given a prescription for nursing care for wound care. To prevent thrombosis, you will receive a daily subcutaneous injection of an anticoagulant until the thirtieth postoperative day. Your prescription for painkillers will also be adjusted. It is important to continue your exercises at home (spirometer, walking, etc.).You will see your surgeon, dietitian and physiotherapist again approximately one month after your surgery. Our specialists Associated department
Oesophageal cancer
Health issues
Bronchiectasis
Nos spécialistes Services associés
Bronchiectasis
Health issues
Cystic fibrosis
Nos spécialistes Services associés
Cystic fibrosis
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Chronic lung-transplant rejection
Nos spécialistes Service associé
Chronic lung-transplant rejection
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Monogenic infertility
Nos spécialistes Service associé
Monogenic infertility
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Idiopathic hypersomnia
Nos spécialistes Service associé
Idiopathic hypersomnia
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Rare ataxia
Nos spécialistes Service associé
Rare ataxia
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Pouchitis
Nos spcécialistes Service associé
Pouchitis
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Refractory coeliac disease
Nos spécialistes Services associés
Refractory coeliac disease